Autism Research Data Coordinator

Simons Foundation; New York (NY); On-site; USD 70,000 - 100,000; Full time

Job summary

Simons Foundation in New York, NY is seeking a Clinical Research Coordinator to support data activities for autism-focused cohorts and biorepositories, including SPARK and Autism BrainNet. You will contribute to QA, standardization, and release of data, liaise with external researchers, and prepare descriptive statistics for inquiries and publications.

The role involves collaboration with SFARI teams, development of data collection platforms, and dissemination of reports to participant and

Qualifications

• Bachelor's degree required; master's preferred.
• Experience with human participants research preferred.
• Experience with data entry, scoring, and summarizing surveys.
• Proficiency with data cleaning and preparing descriptive statistics.
• Experience with SQL or programming and Excel for quality control.
• Familiarity with ASD or neurodevelopmental disorders.

Responsibilities

• Contribute to data quality/cleaning and release efforts for all SFARI cohorts, biorepositories, and other clinical data sets.
• Support data standardization efforts across cohorts, biorepositories, and datasets hosted by SFARI, and test workflows for clinical issues/accuracy.
• Assist with developing and testing relevant data collection and review platforms.
• Assist the Informatics team in gathering requirements for software development related to data collection and release.
• Update SFARI Base documentation (welcome packets, data dictionaries, release notes, etc.).
• Assist with curating phenotypic data from clinical cohorts and biorepositories.
• Prepare data for internal and external inquiries, publications, posters, presentations, and community reports.
• Collaborate with SFARI Clinical Research Manager, SFARI Vice President and Senior Scientific Officer, and Communications team to develop effective methods to disseminate reports and other relevant information to participant and research communities (e.g., webinars, articles, social media, etc.).
• Work on other data-related projects at the Simons Foundation as needed (e.g., answering questions from internal staff or external researchers).
• Perform other duties or tasks as assigned or required.

Skills

Data quality

Data cleaning

Descriptive statistics

SQL

R

Excel

ASD familiarity

Communication

Documentation

Education

Bachelor's degree

Master's degree or 2+ years related experience

Tools

SQL

R

Excel

Job description

Simons Foundation in New York, NY is seeking a Clinical Research Coordinator to support data activities for autism-focused cohorts and biorepositories, including SPARK and Autism BrainNet. You will contribute to QA, standardization, and release of data, liaise with external researchers, and prepare descriptive statistics for inquiries and publications.

The role involves collaboration with SFARI teams, development of data collection platforms, and dissemination of reports to participant and