Stroke Survivor Involvement Lead in Gorseinon

Stroke Association; Gorseinon; Remote; GBP 37,000 - 45,000; Full time

Job summary

Stroke Association seeks a Stroke Survivor Involvement Lead in Wales. The role is home-based with frequent travel across the locality to engage stroke survivors, carers and other stakeholders. 35 hours/week, 18-month fixed-term contract, with a salary circa £41,300 per annum.

The post will work with NHS Wales and Welsh Government to set strategic direction, embedding lived experience into all future work and service improvements in stroke care.

Qualifications

• Proven experience of patient involvement.
• Knowledge of patient and public involvement legislation and methodologies.
• Experience with qualitative and quantitative research methods and data analysis.
• Knowledge of NHS Wales structures and policies, particularly stroke services.

Responsibilities

• Lead on ensuring that lived experience shapes the implementation of key policy documents.
• Engage with patients and families about complex discussions to inform future improvements in stroke care.
• Build effective relationships with Welsh Government, NHS Wales, Third Sector organisations and other Service User representatives.

Skills

Patient involvement

Qualitative & quantitative research

NHS Wales knowledge

Stakeholder engagement

Job description

Stroke Survivor Involvement Lead

Ref: (Apply online only)

Location: Home-based, Wales - However, frequent travel will be required as part of this role (may include team meetings or other work-related meetings)

Hours: 35 hours per week (worked over 5 days a week, Monday to Friday)

Contract: 18-month fixed-term contract

Salary: Circa £41,300 per annum

We re looking for a motivated and passionate person to join the Wales Locality Team.

The involvement Lead is a new role for the Stroke Association in Wales.

Working in partnership with colleagues at NHS Wales and Welsh Government, this role will set a strategic direction to involve and work closely with people affected by stroke; including stroke survivors, their carers, professionals and other stakeholders.

This role will embed a culture of involvement, ensuring the patient and carer lived experience is incorporated into all future work and used to facilitate service improvement.

Key responsibilities will include:

• Taking the lead in ensuring that lived experience shapes the implementation of key policy documents including but not limited to; the Quality Statement for Stroke and Life after Stroke Service Standards for Wales.
• Liaising with patients and families concerning complex, distressing and emotional discussions around their experiences; enabling those experiences to contribute to future improvements in stroke care.
• Building effective relationships and working closely with key stakeholders including Welsh Government, NHS Wales, Third Sector organisations and other Service User representatives.

You will have a proven record of:

• Practical experience of patient involvement.
• In-depth knowledge of patient and public involvement legislation, strategies and methodologies
• Practical experience of qualitative and quantitative social research methods and data analysis
• Knowledge of NHS Wales s structures and key policies particularly stroke services
• This role requires extensive travel across a large geographical locality to visit people at community settings or at home. Candidates must be able to demonstrate how they can meet this requirement of the role

To fulfil the role, you must be a resident of the UK and have the right to work in the UK.

About Us

The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.

We re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

We believe everyone deserves to live the best life they can after stroke. And it s a team effort to get there.

Closing Date: Sunday 27 September 2026 (Midnight)

Interview Date: Week commencing 5 October

N.B. Interviews will be held via video conferencing. Please let us know if this will present any challenges when you submit your application.

Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.

We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.

We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we re happy to discuss any support and adjustments we can make throughout the recruitment process so that you re able to contribute your best in a way that meets your needs.

No agencies please.