Motor Neurone Disease Research Nurse

Integrated Care System; London; On-site; GBP 54,000 - 61,000; Full time

Job summary

A leading healthcare organization based in South West London is seeking a dedicated Motor Neurone Disease Research Nurse. This pivotal position focuses on supporting clinical research and trials, ensuring patients with MND receive optimal care and opportunities to participate in groundbreaking studies. The role entails substantial responsibilities, including collaboration with various healthcare professionals to enhance MND care standards. Ideal candidates will possess strong clinical experience in neurology and a commitment to patient welfare.

Qualifications

• Extensive clinical experience in neurology and research.
• Demonstrated leadership roles and skills.
• Ability to support and deliver clinical trials.

Responsibilities

• Contribute to MND research and clinical trials.
• Collaborate with multidisciplinary teams for effective studies.
• Oversee and support clinical trials to improve patient outcomes.

Skills

Clinical research leadership

Patient rapport building

Basic counselling

Service development experience

Education

NMC Level 1 or above Registered Nurse

Mentorship or equivalent teaching qualification

Masters (MSc) or equivalent in a health related subject

Job description

Go back St George's University Hospitals NHS Foundation Trust

Motor Neurone Disease Research Nurse

The closing date is 27 July 2025

• Motor neurone disease (MND) is a rare neurological condition that causes the degeneration (deterioration and loss of function) of the motor system (the cells and nerves in the brain and spinal cord which control the muscles in our bodies).
• This results in weakness and wasting of the muscles which can result in progressive weakness in the arms, legs, speech and swallowing and sometimes breathing. MND is progressive and symptoms worsen over time. Sadly, MND severely reduces life expectancy and most people with MND die within five years of the onset of symptoms.
• The South West London and Surrey MND Care and Research Network was launched in September 2024 and aims to provide excellent and equitable access to clinical care and research across the regions. The network is lea led by two consultant neurologists with an interested in MND.
• Clinical research and clinical trials are vital to improve the treatment options for people living with MND. At St Georges we are supported by a band 7 lead neurology nurse and two band 6 MND research practitioners and are currently actively recruiting to a number of clinical trials.
• The focus of this role is to ensure all people living with MND in South West London and Surrey have the opportunity to discuss clinical research with a knowledgeable practitioner who can also support our regional network of health care professional providing clinical care to people living with MND in the region.

Main duties of the job

Contribute to the progress of MND research and clinical trials, dedicating 100% of efforts to supporting, delivering, and leading initiatives that contribute to breakthroughs in MND care and understanding.

Collaborate effectively with the MND Association to support the strategic development and growth of the Research Nurse Network.

Oversee and support clinical trials and research efforts aimed at improving outcomes for people living with MND, playing a pivotal role in facilitating high-quality research and trial execution.

Conduct assessments and ongoing monitoring for people living with MND (plwMND) as they enter and participate in research, ensuring thorough, compassionate care and rigorous data collection.

Collaborate with multidisciplinary teams to ensure studies are conducted smoothly and in full compliance with protocols, legislation, and relevant guidelines.

Maintain and manage clinical study databases for plwMND, ensuring accuracy and currency of all research data to support impactful findings.

Serve as an expert resource for patients, caregivers, and healthcare professionals, offering information and support on MND research and clinical trials.

Handle additional responsibilities essential to the efficient operation of MND research and trial initiatives, contributing to the effective management and execution of all related tasks.

About us

St. George's University Hospitals NHS Foundation Trust is one oft he UK's largest healthcare organisations and has recently integrated with Community Services Wandsworth. The Trust shares it's main hospital site in south west London with St. George's University of London and is linked to Kingston Faculty of Health and Social Care Sciences. St. George's has an established national and international reputation as a leading hospital for specialist careincluding neuroscience, cardiac care, stroke and cancer. We provide excellent local care to the residents of Wandsworth and regional care as both, a hyper-acute stroke unit and trauma centre.

As well as acute hospital services, St. George's provides a wide variety of specialist and community hospital-based care and a full range of community services to children, adults, older people and people with learning disabilities. These services are provided from St George's Hospital, Tooting, Queen Mary's Hospital, Roehampton, 11 health centres and clinics, schools and nurseries, patients' homes and Wandsworth Prison.

We employ over 8,000 staff have an annual income of £560m, around 1,100 beds and we serve a population of 1.3 million across south west London.We expect all our staff to share the values that are important to the Trust - being excellent, kind, responsible and respectful - and behave in a way that reflects these.

Job responsibilities

Please see the attached supporting document which contains more and person specification information about the role.

Person Specification

• NMC Level 1 or above Registered Nurse
• Mentorship or equivalent teaching qualification
• Masters (MSc) or equivalent in a health related subject, or working towards
• An advanced practitioner either through formal qualification (as above) and/or extensive clinical experience in neurology
• Evidence of leadership roles & skills
• Ability to build up a rapport with patients and the MDT
• Demonstrable leadership skills
• Basic Counselling skills
• To have proven experience of service development
• Significant clinical experience in supporting, delivering and leading clinical research within health and care

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

St George's University Hospitals NHS Foundation Trust

£54,320 to £60,981 a yearper annum inc HCAS (pro-rata)