Highly Specialist Physiotherapist Specialising in Pompe Disease

University College London Hospitals NHS Foundation Trust; City of Westminster; On-site; GBP 45,000 - 55,000; Part time

Job summary

A leading NHS trust in the UK is seeking a part-time Band 7 Physiotherapist to join the neurometabolic team. The role involves assessing and treating adult patients with Pompe disease through telehealth and clinics, along with developing digital solutions for self-management. Candidates should have substantive postgraduate experience in a physical or neurological setting. This position offers regular supervision and support for professional development, and the opportunity to collaborate with multidisciplinary teams for comprehensive patient care.

Qualifications

• Experience treating patients with inherited metabolic disorders.
• Ability to work collaboratively with multidisciplinary teams.

Responsibilities

• Assess and treat patients with Pompe disease in telehealth and clinics.
• Develop and collaborate on digital solutions to promote self-management.
• Provide a comprehensive physiotherapy service prioritizing Pompe disease.

Skills

Effective communication

Positive approach to management of complex disability

Education

Substantive postgraduate experience in a physical, neurological setting

Job description

Overview

An exciting opportunity to join the existing neurometabolic team at the National Hospital for Neurology and Neurosurgery (NHNN) for a new physiotherapy post treating adult patients with Pompe disease (acid maltase deficiency, a lysosomal storage disorder) within the Department of Inherited Metabolic Diseases and the Therapy and Rehabilitation Services. The funding is limited to two years. The postholder will assess and treat patients with the MDT and independently in telehealth and in clinics. You will liaise with other neurometabolic physiotherapists in England to promote self-management by developing digital solutions. We welcome applications for this part-time Band 7 Physiotherapist role (30 hours per week). A substantive postgraduate experience in a physical, neurological setting is required. Regular supervision and support for continued professional development is offered, with the opportunity to work on projects within your peer group.

To develop a new role of specialist physiotherapist in Pompe disease and other inherited metabolic disorders in the NHNN Charles Dent Metabolic Unit and to collaborate with other LSD treatment centres in the UK to provide a high standard of physiotherapy assessment, treatment and advice for patients with chronic and progressive neuro-disability caused by Pompe disease in an outpatient setting. The post is non-rotational. The post holder is responsible for providing a physiotherapy service to patients with inherited metabolic disorders, prioritising Pompe disease, and reports directly to the consultants in the Charles Dent Metabolic Unit and the acute and outpatient Clinical Specialist in Physiotherapy. The successful candidate must work collaboratively within the integrated multidisciplinary LSD teams to offer a comprehensive patient-centred service.

Responsibilities

• Assess and treat adult patients with Pompe disease in both MDT-led settings and independently in telehealth and clinic appointments.
• Liaise with other neurometabolic physiotherapists in England to promote self-management by developing digital solutions.
• Develop a new specialist physiotherapist role for Pompe disease and other inherited metabolic disorders in the NHNN Charles Dent Metabolic Unit; collaborate with other LSD treatment centres in the UK to provide physiotherapy assessment, treatment and advice for chronic and progressive neuro-disability due to Pompe disease in outpatient settings.
• Deliver a non-rotational physiotherapy service prioritising Pompe disease; report to the consultants in the Charles Dent Metabolic Unit and the acute/outpatient Clinical Specialist in Physiotherapy.
• Work collaboratively within the integrated multidisciplinary LSD teams to provide a comprehensive patient-centred service.

Requirements and Skills

• Substantive postgraduate experience in a physical, neurological setting.
• Effective communication and a positive approach to the management of complex disability.

About UCLH

University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services to people from the local area, the UK and overseas. Our vision is to deliver high-quality patient care, excellent education, and world-class research. We operate across multiple sites within the group, including University College Hospital (incorporating the Elizabeth Garrett Anderson Wing). We are dedicated to diagnosing and treating complex illnesses and provide world-class support services including critical care, imaging, nuclear medicine and pathology. We are committed to sustainability and have pledged to become a carbon net zero health service, with direct emissions net zero by 2031 and indirect emissions by 2040.