Reports to: Director of ServiceImprovement and Development
Responsible for: 6 Helpline CareNavigators (HCNs)
Location: Hybrid – minimum oneday per week in Milton Keynes office, remainder from home
Hours: 28 hours per week (someevening and weekend hours may be required)
Salary: £32,400 per annum (FTE £40,500)
Contract Type: Permanent,Part-Time
Benefits:
- Employer contribution to a workplace-definedpension scheme
- 28 days annual leave plus bank holidays (prorata)
- Employee Assistance Programme (UKHealthcare))
Make a Difference Every Day
At PSPA, we support people living with ProgressiveSupranuclear Palsy (PSP) and Corticobasal Degeneration (CBD)—two rare andcomplex neurological conditions. As our Helpline and Support ServicesManager, you’ll lead a small, passionate team dedicated to providinghigh-quality support to individuals and families at critical moments in theirlives.
This is more than a management role—it’s a chanceto drive real change, improve lives, and lead a service that’s a lifeline formany across the UK.
What You’ll Be Doing:
- Lead and Inspire: Manage andsupport a team of 6 Helpline Care Navigators (including posts based in Scotlandand Wales), and a team of volunteers providing out-of-hours support.
- Deliver Impact: Ensure peopleaffected by PSP & CBD receive timely, empathetic, and accurate support andinformation.
- Enhance Support Services:Design and deliver tailored support groups, including groups for carers andpeople who are newly diagnosed.
- Champion Service Quality:Monitor performance, gather data, and use insights to shape and improve servicedelivery.
- Promote Inclusion & Safety:Ensure all services are accessible and comply with safeguarding and equalitystandards.
- Lead in Safeguarding: Act asDeputy Safeguarding Lead, maintaining a safe and supportive environment for allservice users.
- Collaborate & Influence:Work with internal teams to ensure service user voices influence policy,communications, and PSPA publications.
Key Responsibilities:
- Line manage, develop, and support the helplineteam and volunteers.
- Lead the planning, delivery, and evaluation ofsupport services.
- Work with the Volunteer Coordinator to deliverevening helpline services.
- Develop and implement policies to ensure safe,effective, and evidence-based service delivery.
- Ensure all work reflects the lived experience ofpeople affected by PSP & CBD.
- Support the creation of new services and resourcesbased on community need.
- Contribute to the editorial direction of PSPA’smagazine, ensuring it reflects service users' perspectives.
- Deputise for the Director of Service Improvementand Development, including leadership responsibilities and safeguardingoversight.
Person Specification
Essential Skills & Experience:
- Proven experience in managing a helpline, support,or care service.
- Strong people management and team developmentskills.
- Excellent communication and interpersonal skills—empathetic,clear, and confident.
- Experience working with people affected by complexhealth or neurological conditions.
- Sound understanding of safeguardingresponsibilities and procedures.
- Ability to use data and insights to monitor andimprove services.
- Skilled in designing and facilitating supportsessions or groups.
- Comfortable working independently, flexibly, andacross remote/hybrid teams.
- Confident IT user, including case management andreporting systems.
- Familiarity with equality, diversity, andinclusion best practices in health or care settings.
Desirable:
- Experience of managing volunteers or out-of-hoursservices.
- Knowledge of PSP, CBD, or rare and neurologicalconditions.
Personal Attributes:
- Compassionate and person-centred inapproach
- Strong leadership presence, able to motivate andempower others
- Detail-oriented and organised, yet flexible andadaptable
- Committed to continuous improvement
- Collaborative and open to feedback
- Passionate about making a difference for peoplewith rare conditions
If you’re looking for a meaningful role where yourleadership can directly improve lives, we’d love to hear from you.