Events and Engagement Officer

Huntington's Disease Association; Greater London; Remote; GBP 28,000 - 34,000; Full time

Benefits offered by this job

Pension scheme with 3% employer contr.

Flexible working and TOIL

Job summary

The Huntington's Disease Association is seeking an experienced Events and Engagement Officer (Children, Young People and Young Adults) to deliver a year-round programme of events and activities. This home-based role will involve regular travel across the UK and may require evening, weekend and overnight commitments to support residentials and key events.

You will lead planning, coordination and evaluation of events, coordinate the HD Youth Voice, and work closely with colleagues to ensure the

Qualifications

• Experience of volunteer management or event management.
• Experience coordinating travel, accommodation, venues and participant communications.
• Experience working with children, young people and/or young adults.
• Strong communication and organisational skills.
• Ability to gather feedback to improve activities and events.
• Proficiency with maintaining records in CRM/databases and monitoring/reporting.

Responsibilities

• Deliver a year-round programme of online, local and national activities for children, young people and young adults.
• Lead planning, coordination and evaluation of events and residentials.
• Coordinate and support HD Youth Voice (HDYV) and volunteers.
• Collaborate with colleagues to reflect the views of young people in the organisation’s work.
• Attend key annual events; travel across England and Wales; occasional evenings, weekends and overnight commitments.

Skills

Planning and delivering events

Coordinating multiple priorities

Logistical coordination (travel, AC, L

Working with children/young people/YA

Feedback collection and analysis

CRM/databases experience

Tools

CRM systems

Job description

Do you have experience of volunteer management or event management?

We are looking for an experienced Events and Engagement Officer to join the team in this home based, full-time role.

Position: Events and Engagement Officer (Children, Young People and Young Adults)

Location: Home-based (but with regular travel across the UK as part of the role)

Hours: Full Time, 35 hours a week

Contract: Permanent

Closing Date: Tuesday 24 November 2026

Interview Dates: Interviews will likely take place in Liverpool on Wednesday 2 December, Friday 4 December, or Friday 11 December or Monday 30 November.

The Role

The charity supports people affected by Huntington's disease across England and Wales. Children, young people and young adults affected by Huntington's disease can face unique challenges. Through a programme of events, activities, volunteering and involvement opportunities, we support children and young adults to connect with others, reduce isolation, increase understanding of Huntington's disease and have their voices heard.

The Events and Youth Engagement Officer will play a key role in delivering a year-round programme of online, local and national activities for children and young adults affected by Huntington's disease across England and Wales. You will lead the planning, coordination and evaluation of events and residentials, ensuring activities are safe, inclusive, well organised and deliver a positive experience for participants.

You will coordinate and support HD Youth Voice (HDYV), including supporting volunteers, facilitating opportunities for involvement, and working alongside members as they develop and deliver activities, projects and initiatives that reflect their priorities and experiences. Working closely with colleagues across the organisation, the role will help ensure that the views and experiences of children, young people and young adults inform and influence the work of the Association.

This role requires significant travel throughout England and Wales and regular attendance at evening, weekend and overnight events, including residential programmes. You will be expected to attend key annual events with time off in lieu.

About You

We are looking for someone with experience of:

• Planning, coordinating and delivering events.
• Coordinating multiple priorities and deadlines.
• Coordinating logistical arrangements, including travel, accommodation, venues and participant communications.
• Working with children, young people and/or young adults.
• Gathering and reviewing feedback to improve activities and events.
• Maintaining records, databases, CRM systems or similar systems and using information to support monitoring, evaluation and reporting.

The holder of this post is required to possess a car with regular access for work purposes and hold a clean legal UK driving licence.

About the Organisation

The charity was founded in 1971 and provides specialist support to people affected by Huntington’s disease across England and Wales. The focus is to raise awareness of Huntington’s disease and offer practical advice and support, training to health and social care professionals and fund research into the disease to achieve a better life for anyone affected by Huntington's disease.

Benefits include:

• 25 days annual leave plus public holidays (pro rata for part-time staff)
• 1 additional days’ leave for your wellbeing or to mark cultural occasions
• A pension scheme with 3% employer contribution
• Flexible working approach and TOIL policy (access to time off in lieu of additional hours worked)
• Collaborative, supportive and positive working environment and fantastic learning and development opportunities

The successful candidate will need to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity. All applicants must be able to demonstrate the right to work in the UK and are subject to a three-month probationary period.

This post is exempt from the provisions of Section 4(2) of the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975. You are therefore not entitled to withhold information about convictions which for any other purposes are ‘spent’ under the provisions of the Act.

You may also have experience in areas such as Volunteer Engagement, Volunteer Management, Events Officer, Volunteering Officer, Events Executive, Events Coordinator, Events Administration, Events Administrator, Volunteer Events, Mass Participation, Challenge Events, Challenge Events Officer.