Engagement and Support Officer – Rare Resources Scotland

Genetic Alliance UK; Winford; Remote; GBP 14,000; Part time

Job summary

A health-focused charity organization in the UK seeks an Engagement and Support Officer for a 6-month pilot project. The role focuses on delivering outreach events and providing support to families affected by genetic conditions. Ideal candidates are empathetic and collaborative with experience in event delivery and information services. This position offers a salary of £13,859 for 28 hours/week, with remote work and occasional travel.

Benefits

Generous annual leave allowance plus bank holidays

Free access to Employee Assistance Programme

Qualifications

• Experience in delivering engagement events within a charity or healthcare setting.
• Proven ability to create supportive information services.
• Strong interpersonal skills to work with diverse stakeholders.

Responsibilities

• Deliver outreach activities and events for families living with genetic conditions.
• Assist with the development of Scotland-specific support services.
• Facilitate the 'Contact Us' information service.

Skills

Engagement event delivery

Information service provision

Collaboration

Empathy

Job description

Community Development & Social Enterprise

Disability

Equality & Law

Health

Housing & Homelessness

Learning

Local

Local Infrastructure Organisation

Older People

Other

Social Care

Youth

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• Remote:Home based with travel within Scotland.
• Closing20th August 2025
• Advertised from 24th July 2025
• £13,859 for 4 days / 28 hours per week for a six month period. (6-months FTE £17,324). Occasional evening and weekend work, including some overnight stays, may be required.

Role

We are seeking an empathetic, proactive, and collaborative new member of the Genetic Alliance UK team. Our newEngagement and Support Officer will deliver a 6-month pilot project to deliver events and create a supportivecommunity for families in Scotland living with genetic, rare, and undiagnosed conditions.

Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare, and undiagnosedconditions in the UK. Our members and the people they support are at the heart of everything we do. We advocatefor fast and accurate diagnosis, good quality care, and access to the best treatments. We actively supportprogress in research and engage with decision-makers and the public about the challenges faced by ourcommunity.

This vital role, collaborating closely with our Head of Scotland and Public Affairs, will be instrumental indelivering a groundbreaking pilot project that offers new support to these families. This unique chance allowsyou to work directly with those affected by genetic, rare, and undiagnosed conditions, expand your professionalnetworks, and help deliver a brand new pilot support service. Key responsibilities include assisting with thedevelopment of Scotland-specific support and information services, delivering a programme of in-person andonline outreach activities and events, and disseminating our early intervention information toolkit – RareResources for Scotland. You will also assist with the facilitation of Genetic Alliance UK’s ‘Contact Us’information service and work in partnership with key local organisations to deliver holistic support.

This role would be a great fit for someone with a background in delivering engagement events and providinginformation services within a charity, healthcare, local authority or social care setting.

The successful candidate will be required to complete a Disclosure Scotland CHECK.

• Generous annual leave allowance of 25 days (pro rata) plus bank holidays and Christmas closure.
• Free access to our Employee Assistance Programme.

Application notes

To apply please email [e-mail] with your CV and a cover letter by 17:00 on Wednesday 20August for the attention of Natalie Frankish, Head of Scotland and Public Affairs.

• In your cover letter please outline your experience, why you are interested in this role, your location and howyou meet the person specification.
• Please save your documents as YourName.RRESO.CV andYourName.RRESO.CoverLetter and use RRESO Application as the email subject line.
• Please note thatapplications which are just generic cover letters or CVs without covering letters will not beconsidered.

Candidates selected for an interview will be contacted by close of business by Friday 22 August.

Interviews will be held via zoom on Wednesday 27 August and Thursday 28 August. If you have a preference for one ofthese days please give details in your application.

Due to capacity restrictions we will not be able to provide feedback for candidates not selected for an interview. Asthe successful candidate will be handling sensitive health data and potentially meeting vulnerable individuals,successful candidates will have to pass a disclosure and barring security check.

A specific job location has not been provided

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