Clinical Nurse Specialist Mitochondrial disease and Channelopathies

Integrated Care System; London; On-site; GBP 56,000 - 64,000; Full time

Job summary

An exciting opportunity has arisen for a Clinical Nurse Specialist in Mitochondrial disease and Channelopathies at a renowned NHS trust in London. This role involves being a key player in a multidisciplinary team to provide comprehensive care to patients, emphasizing advocacy and communication. Ideal candidates will possess extensive clinical experience and be registered nurses, contributing to the trust's vision of top-quality patient care and excellence in service delivery.

Qualifications

• Registered Nurse Part 1, 2 or relevant section of the register.
• Minimum 3 years' relevant post registration experience in same specialty.
• Demonstrates awareness of research and evidence-based practice.

Responsibilities

• Member of the Multidisciplinary team leading clinics to support patients.
• Advocating for patients dealing with external services.
• Ensuring that care reflects UCLH's vision and values.

Skills

Communication

Teamwork

Resource management

Education

Registered Nurse

Masters Degree

Honours Degree in Nursing

Job description

Go back University College London Hospitals NHS Foundation Trust

Clinical Nurse Specialist Mitochondrial disease and Channelopathies

The closing date is 05 August 2025

An exciting opportunity has arisen to work in the multi-disciplinary neuromuscular diseases team at Queen Square NHNNThe Highly Specialised Services (HSS) for Rare Mitochondrial and Neuromuscular Disorders provides comprehensive assessment and management of patients with primary mitochondrial diseases and rare muscle channelopathies.

The ideal candidate will have experience of working with complex neurology patients but full training, education and support will be provided.

This is an exciting time to join the team as we are in the process of reviewing the service ensuring we are able to meet the needs of our patients now and in the future. The successful individual will have a pivotal role in delivering UCLH and neurology service objectives ensuring that the care delivered reflects UCLH's vision and values.

Main duties of the job

The Clinical Nurse Specialist will be a member of the Multidisciplinary team, working closely with specialist therapists and Consultants neurologists as a competent practitioner.

The role involves leading clinics to support patients and also to advocate for them when dealing with external services who may have limited experience of such rare disorders.

About us

University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services, to people from the local area, from throughout the United Kingdom and overseas. Our vision is to deliver top-quality patient care, excellent education, and world-class research.

We provide first-class acute and specialist services across eight sites:

University College Hospital (incorporating the Elizabeth Garrett Anderson Wing)

National Hospital for Neurology and Neurosurgery

Royal National ENT and Eastman Dental Hospitals

University College Hospital Grafton Way Building

Royal London Hospital for Integrated Medicine

University College Hospital Macmillan Cancer Centre

The Hospital for Tropical Diseases

University College Hospital at Westmoreland Street

We are dedicated to the diagnosis and treatment of many complex illnesses. UCLH specialises in women's health and the treatment of cancer, infection, neurological, gastrointestinal and oral disease. It has world class support services including critical care, imaging, nuclear medicine and pathology.

We are committed to sustainability and have pledged to become a carbon net zero health service, embedding sustainable practice throughout UCLH. We have set an ambitious target of net zero for our direct emissions by 2031 and indirect emissions by 2040.

Job responsibilities

For the full Person Specification and more information regarding the main responsibilities of this role, please refer to the attached Job Description.

Come and be a part of the best NHS trust in England to work for, according to our staff*

* UCLH top trust to work at in England - In the most recent NHS staff survey UCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England for the third year in a row.

UCLH recognises the benefits of flexible working for staff To find out more, visit: Flexible working.

To discover more about what makes UCLH a great place to work, visit: Why Choose UCLH?

Person Specification

Knowledge and Qualifications

• Registered Nurse Part 1, 2 or relevant section of the register
• Teaching/Assessment programme

Experience

• Minimum 3 years' relevant post registration experience in same specialty (HLP2), (FO)
• Completed/completing Masters Degree (HLP2) (FO) OR Minimum 2 years' relevant post registration experience in same specialty (HLP1), (SO)
• Completed/completing Honours Degree in Nursing, midwifery, research or ethics (HLP1), (SO

Skills and Abilities

• Demonstrates awareness of research and evidence-based practice
• Willing to provide support to other clinical areas within the division
• Demonstrates awareness of resource management issues within boundaries of role
• Previous experience in audit and evaluation
• Able to work across organisational and professional boundaries
• Able to negotiate effectively with different disciplines (HLP2)
• Understanding of relevant national strategy / policy and how this relates to the service
• Innovative approach to service delivery
• Experience in developing service strategies

Communication

• Demonstrates awareness of the importance of working in a multi-disciplinary team
• Communicates effectively verbally, in writing and in electronic formats
• Communicates with patients and carers in an empathetic manner
• Demonstrates understanding of good practice in Customer Care

Personal and People Development

• Demonstrates evidence of professional development in line with KSF, maintains updated Portfolio
• Experience as a preceptor/facilitator/mentor
• Reflective in Practice
• Demonstrates evidence of ability to educate others
• Demonstrates up to date knowledge and expertise in the specialty
• Evidence of developing & leading nurse led clinics / services (HLP2)
• Evidence of ability to work collaboratively (HLP1) / autonomously (HLP2)
• Published articles / poster presentations

Responsibilities towards promoting Equality Diversity and Inclusion

• Respects the privacy and dignity of the individual
• Understands the implications of Equal Opportunities in practice
• Demonstratable understanding of the Equality, Diversity, and Inclusion and/or Knowledge of the NHS obligations under the Equality Act 2010 and the Public Sector Equality Duties

Ensure the risk of infection to self, colleagues, patients, relatives and visitors is minimised by:

• Being familiar with, and adhering to Trust policies and guidance on infection prevention and control.
• Completing all required training and education (both via e-learning and face to face) on infection prevention and control.
• Including infection prevention and control as an integral part of your continuous personal/professional development and included in your annual appraisal
• Taking personal responsibility so far as is reasonably practicable, in helping ensure that effective prevention and control of health care associated infections is embedded into everyday practice and applied consistently.

Specific Requirements

• Flexible approach to shift patterns
• Knowledge of key professional issues and NMC guidelines relating to professional Practice
• Ability to manage and evaluate change

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

University College London Hospitals NHS Foundation Trust

Address

National Hospital for Neurology & Neurosurgery, UCLH

£56,276 to £63,176 a yearper annum inclusive of HCAS

Contract

Permanent

Working pattern

Full-time

Reference number

309-UCLH-6606

Job locations

National Hospital for Neurology & Neurosurgery, UCLH