Clinical Nurse Specialist (Epidermolysis Bullosa)

Transformationunitgm; London; Remote; GBP 54,000 - 61,000; Full time

Job summary

A leading healthcare trust in London is seeking an experienced Clinical Nurse Specialist for Epidermolysis Bullosa. This home-based role requires managing complex patient care, providing specialist advice, and working flexibly across the UK. The ideal candidate will have a degree, relevant experience, and excellent communication skills. Join a dedicated team committed to high-quality patient care and continuous professional development.

Qualifications

• Experience managing complex medical conditions.
• Ability to work autonomously and flexibly.

Responsibilities

• Manage a caseload of complex patients.
• Provide clinical support and monitor patients at home.

Skills

Clinical reasoning

Effective time management

Communication

Education

Degree level qualification

Post registration qualification

Job description

Main area Clinical Nurse Specialist (Epidermolysis Bullosa) Grade NHS AfC: Band 7 Contract Permanent: This unique post is home based, but applicants must be within easy reach of GSTT sites in London (max. 90 minutes door-to-door). This post does not attract London high cost allowance as all travel and subsistence costs are reimbursed. Hours

• Full time
• Flexible working
• Home or remote working

37.5 hours per week (Monday-Friday) Job ref 196-NM12878

Employer Guy's and St Thomas' NHS Foundation Trust Employer type NHS Site St Thomas' Hospital Town London Salary £54,320 - £60,981 This post is Home Based and does not attract HCA Salary period Yearly Closing 08/06/2025 23:59 Interview date 19/06/2025

Clinical Nurse Specialist (Epidermolysis Bullosa)

NHS AfC: Band 7

Guy’s and St Thomas’ is among the UK’s busiest and most successful NHS foundation trusts. We provide a full range of hospital and community services for people in south London and as well as specialist care for patients from further afield including cancer, renal, orthopaedic, respiratory and cardiovascular services.

Guy’s is home to the largest dental school in Europe and a £160 million Cancer Centre opened in 2016. As part of our commitment to provide care closer to home, in 2017 we also opened a cancer centre and a kidney treatment centre at Queen Mary’s Hospital in Sidcup. St Thomas’ has one of the largest critical care units in the UK and one of the busiest emergency departments in London. It is also home to Evelina London Children’s Hospital.

Evelina London cares for local children in Lambeth and Southwark and provides specialist services across south east England including cardiac, renal and critical care services. We lead a number of specialist service networks aiming to ensure children are treated locally where possible, but have access to specialist expertise when they need it. Our community services include health visiting, school nursing and support for families of children with long-term conditions.

Our adult community services teams deliver care at the heart of the local communities we serve, working in partnership with GPs, local authorities and other healthcare and voluntary sector organisations. Working with our partners in Lambeth and Southwark, we are focusing on new ways of working to improve care for local patients.

In February 2021 the Royal Brompton and Harefield joined Guy’s and St Thomas’ NHS Foundation Trust, bringing together world-leading expertise in the care and research of heart and lung disease. Our merger provides a once in a generation opportunity to build a lasting, world-renowned heart and lung centre, providing the highest quality care for patients and conducting world-leading research.

We have a reputation for clinical excellence and high quality teaching and research. We are part of King’s Health Partners, one of eight accredited UK academic health sciences centres. In partnership with King’s College London we have dedicated clinical research facilities including an MHRA accredited Phase I clinical trials unit.

Patients are at the heart of everything we do and we pride ourselves on ensuring the best possible patient experience as well as safe, high quality care. We are proud to have one of the lowest mortality rates in the NHS. Following a comprehensive Care Quality Commission (CQC) inspection in 2019 we maintained our overall rating of ‘good’. Our adult community services achieved a rating of ‘outstanding’.

The commitment of our 23,500 staff is key to our success. We are one of the largest local employers and we aim to develop and support all our staff so they are able to deliver high quality, safe and efficient care. The 2019 NHS staff survey results show that we have one of the most engaged and motivated workforces in the NHS. We know this has a positive impact on the care provided to our patients.

We have one of the most ambitious capital investment programmes anywhere in the NHS.

Job overview

We are looking for an experienced nurse to join the highly specialised nursing team and national service supporting adults with the genetic skin disorder, Epidermolysis Bullosa (EB). The post holder will be a member of a larger, well-established MDT at the world-renowned St Johns Institute of Dermatology within Guy’s & St Thomas Hospital, London.

The post holder will develop, implement and evaluate a seamless specialist Epidermolysis Bullosa (EB) service, ensuring that patients receive the highest standard of clinical care. They will act as a lead specialist and demonstrate a high level of expertise within the EB service; providing specialist advice, education and support to health care professionals and patients. The post holder will be responsible for contributing to the ongoing development of clinical practice, research and standards of care within the service.

This post does not attract London High Cost Allowance, as all travel and subsistence costs are reimbursed.

Interview date: 11.06.2025

Main duties of the job

The post holder will be responsible for managing their own caseload of complex patients and provide hospital inpatient, outpatient and other clinical support.

A core aspect of the nursing service involves monitoring and supporting people with EB in their homes. Therefore, extensive travel throughout the UK and flexibility in working patterns is essential.

Applicants must be experienced registered nurses and have practiced at a minimum band 6 or above. We are looking for someone who has experience in tissue viability, palliative care, dermatology, long term or life limiting conditions or other transferrable clinical skills.

Experience of EB is desirable but not essential.

They must be able to work autonomously, and demonstrate resilience and determination.

The successful candidate must hold a full UK driving licence and access to a car is essential.

Working for our organisation

About the Trust

Guy’s and St Thomas’ NHS Foundation Trust comprises five of the UK’s best known hospitals – Guy’s, St Thomas’, Evelina London Children’s Hospital, Royal Brompton and Harefield – as well as community services in Lambeth and Southwark, all with a long history of high quality care, clinical excellence, research and innovation.

We are among the UK’s busiest, most successful foundation trusts. We provide specialist care for patients including heart and lung, cancer and renal services as well as a full range of local hospital and community services for people in Lambeth and Southwark.

Our values

Our values help us to define and develop our culture, what we do and how we do it.

It is important that we all understand and reflect these values in our work. We are:

Ambitious – we innovate and strive for excellence

Inclusive – we respect each other and work collaboratively

Our values and behaviours framework describes what it means for every one of us in the Trust to put our values into action. A summary of our framework can be found on our Trust jobs pages and our intranet.

Detailed job description and main responsibilities

Clinical Leadership and Managerial

§ To work autonomously, managing a caseload of patients within the specialty whilst working as part of the multidisciplinary team, delivering individualised and personalised direct patient care

§ Be responsible for assessing and recognising emergencies in the speciality. To interpret information and take appropriate action and to lead others to do the same.

§ Act as an advocate for patients within the department, to ensure a patient orientated approach to the delivery of care and to meet standards within the NHS Plan and other relevant guidelines.

§ Ensure that patients receive high quality clinical care and a good patient experience, having regard for their customs, religious beliefs and doctrines.

Quality

§ Facilitate a high quality, cost effective specialist service through monitoring and audit and other quality initiatives agreed by the Trust

§ Lead on and participate in key developments relating to the specialty so that high quality patient focused services are promoted.

§ Enhance the interface between staff, patients, community staff and visit.

§ Attend and participate in multi-professional team meetings.

Education and Training

§ Act as a facilitator/mentor/preceptor to student nurses and others.

§ Assess own educational needs and take steps to keep up to date with clinical and nursing developments in line with requirements of the Nursing & Midwifery Council.

§ Develop the partnership between the Trust and academic staff at local Universities involved in pre-registration and post-registration nursing and medical programmes.

Research and Development

§ Promote and undertake nursing research and to publish the outcome, updating own knowledge to promote excellence in clinical practice.

§ Utilise research findings in the delivery of specialist patient care, developing new ways of working and to disseminate relevant information to staff.

Management and Leadership

§ Provide a leadership role model and demonstrate expert knowledge and high standards of clinical practice.

§ Develop the role according to patients changing needs and research findings, within the resources available.

§ Maintain accurate records of the clinical service and ensuring that confidentiality of information is adhered to

Organise own work and manage own caseload and practice, identifying and maintaining supportive networks for self and other staff members

General

§ Act in accordance with the Nursing & Midwifery Council Code of Professional Conduct and Scope of Professional Practice and be accountable for his/her actions at all times.

§ Maintain up-to-date records. Ensuring that confidentiality is respected and that the standards for “Record Keeping” are met.

Full Job description and Person Specification available

Person specification

Values and behaviours

• Demonstrate values and behaviours in line with Trust values

Knowledge

• A Degree level qualification or equivalent experience
• Post registration qualification in appropriate area of speciality or equivalent post qualification experience.
• Knowledge of EB
• Minimum of two years at band 6 level in appropriate speciality

Skills

• Clinical reasoning skills to comprehensively assess patients' needs/treatments
• Experience managing patients with complex medical or life limiting conditions
• Effective time management
• Ability to work independently
• Proven communication skills with ability to manage complex situations and appropriately deliver sensitive and difficult outcomes
• Advanced phlebotomy and cannulation

Experience

• Extensive experience of working autonomously at an advanced level within the specialist area delivering effective patient focused care
• Proven evidence of management / leadership skills and autonomous practice
• Proven experience in delivering teaching to healthcare professionals and patients

Additional

• Ability to work flexibly to meet service requirements
• Full UK driving licence
• Ability to travel independently throughout UK

Guy’s and St Thomas’celebrates, respects and values the diversity of its staff and patients. We review our policies, procedures and practices to ensure that all employees, patients and carers are treated equitable according to their needs. We are actively committed to ensuring that no one who applies for a job, works or study’s at the Trust, or accesses our services is discriminated against on the grounds of race, ethnicity, nationality, disability, religion or belief, age, gender identity , gender reassignment, sexual orientation, pregnancy and maternity/paternity, or marital/civil partnership.

Applications are welcomed from applicants with a disability. We can make reasonable adjustments and offer support and advice in a variety of ways throughout the application process. Equality of opportunity is our policy.

As an organisation we are committed to developing our services in ways that best suit the needs of our patients. This means that some staff groups will increasingly be asked to work a more flexible shift pattern so that we can offer services in the evenings or at weekends.

We are committed to supporting all employees to achieve a healthy work life balance and to work in a way that is best for them and our patients. We will consider all requests to work flexibly, taking in to account the individual’s personalcircumstances as well the needs of the service. We encourage all prospective applicants to discuss their individual circumstances with the recruiting manager as part of the on-boarding process.

Your e-mail address is important to us -We communicate to all job applicants via the e-mail address which has been provided on the application form. Please ensure that you check your e-mail on a regular basis.

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Employer certification / accreditation badges

You must have appropriate UK professional registration.

This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.

Name Kati Paalosalo-Harris Job title Advanced Nurse Practitioner/EB CNS manager Email address [e-mail] Telephone number 07554223358 Additional information

We very strongly encourage that you arrange an informal visit or make other contact to learn more about this exciting and unique role.

[e-mail] 07554 223358

[e-mail] 07786 850684