Senior Data Portfolio Manager New

The Michael J. Fox Foundation; Northern (KY); Hybrid; USD 110,000 - 130,000; Full time

Benefits offered by this job

Medical insurance

Dental and vision plans

401(k) plan

Flexible spending accounts

Life and disability insurance

Vacation and wellbeing days

Flexible work environment

Annual bonus

Job summary

The Michael J. Fox Foundation is seeking a Senior Data Portfolio Manager to oversee data across the Foundation’s funded research portfolio.

You will coordinate data scoping, standardization, quality control, and submission from generation to distribution, working with internal teams and external grantees to guide data collection, documentation, and reuse. Ideal candidates will have experience in data management and analytics, a passion for open science and bioinformatics, and the ability to

Qualifications

• Experience in data management, analytics, data science or related field (neuroscience preferred).
• Interest in open science and bioinformatics.
• Action‑oriented, diplomatic, agile, and team‑advocate with multi‑year priorities.
• Understanding of data product design and software development lifecycles.
• Strong analytical and quantitative skills.
• Excellent written and verbal communication across multiple formats.

Responsibilities

• Coordinate data management across a portfolio of funded studies, including scoping, standardization, quality control and submission.
• Collaborate with internal and external partners to identify data needs and ensure alignment with timelines.
• Support data platforms and pipelines for efficient ingestion, organization and sharing of data.
• Foster cross‑team collaboration to maintain consistent data practices and smooth handoffs.
• Develop and maintain data standards, submission guidelines, and workflows for consistency and scalability.
• Ensure grantees prepare and submit data per Foundation governance and best practices.
• Track data deliverables, timelines and risks with clear stakeholder updates.

Job description

Position Summary

The Michael J. Fox Foundation for Parkinson’s Research (“the Foundation”) is seeking top talent for its Senior Data Portfolio Manager . This position focuses on the management, coordination, and stewardship of research data across the Foundation’s funded portfolio. This role works closely with scientific portfolio managers on the Translational Research team to identify where data management support is needed across complex programs and projects, and partners with both internal teams and external grantees to guide data collection, standardization, quality control, and submission. This includes ensuring that datasets are properly organized , documented, and made available through appropriate data distribution platforms so they can be accessed and reused by the broader research community.

Key Responsibilities

• Coordinate data management activities across a portfolio of funded studies, supporting research data scoping, standardization, quality control, and submission from generation through distribution and reuse
• Work closely with internal scientific portfolio managers and external grantees to identify data management needs and ensure alignment with priorities and timelines
• Support the implementation and use of data platforms and pipelines to enable efficient data ingestion, organization, and sharing
• Facilitate collaboration across internal teams (scientific, data product, grant operations) and external partners to ensure consistent data practices and smooth handoffs
• Contribute to the development and maintenance of data standards, submission guidelines, and workflows to improve consistency and scalability across programs and projects
• Ensure research data are prepared, documented, and submitted by grantees in accordance with Foundation standards, data governance policies, and community best practices
• Track and communicate data deliverables, timelines, and risks, providing clear updates to stakeholders and leadership
• Coordinate with internal and external project teams in partnership with the Foundation’s data product owners and executive sponsors to ensure data management strategy is consistent with the Foundation’s needs
• Establish effective communication and reporting methods to build transparent and trusting partnerships
• Recommend technology investments, statistical methods, and practical solutions to scale Parkinson’s cohorts and data
• Support data releases and growth tactics coordinating across internal Marketing, Communications, Development, and Research teams
• Integrate deep considerations for research data governance, compliance, and patient privacy into all aspects of data management and sharing
• Create, maintain, and socialize user documentation (e.g., data dictionaries, user guidance documentation, etc.) to support data reusability
• Effortlessly code-switch between distilling technical complexities to less-technical senior audiences and translating clinical/scientific objectives into business requirements for developers
• Assist in reviewing data-related project proposals and engaging in procurement activities
• Other duties as assigned, based on departmental and business unit needs

Qualifications & Skills

• Relevant experience in data management, analytics, data science, or related field (neuroscience preferred)
• Relevant experience and interest in open science, open data, and bioinformatics
• Action-oriented, diplomatic, agile, and proven team-advocate with the ability to balance short-term deadlines with multi-year priorities
• Understanding of data product design, software development lifecycles, and data usability
• Strong analytical and quantitative skills
• Strong written and verbal communication skills across various mediums (i.e., presentations, poster, publications, team updates)
• Extremely organized with strong attention to detail
• Demonstrate initiative and independence to identify short and long-term portfolio needs with input from peers within and across research business units

Compensation & Benefits

• 15+ options for medical insurance (with the Foundation paying 90 percent of the premiums)
• Competitive dental and vision plans
• 401(k) plan with 6 percent employer contribution
• Flexible spending accounts
• Employer paid life and disability insurance
• 18 Vacation Days; 12 Well-Being (Sick) Days; 2 Personal Days; summer Fridays (office closure at 2pm) and a summer holiday week over July 4
• Flexible work environment. We trust all employees to work closely with their manager and colleagues to determine when, where and how programs and projects get done.
• Employees are also eligible for a discretionary bonus on an annual basis. The Foundation provides staff and leadership cultivation through regular training courses and events.

Salary Range

$110,000 - $130,000 USD

About Us

The Michael J. Fox Foundation for Parkinson’s Research was founded in 2000 with one clear objective: accelerating meaningful therapeutic advances and, ultimately, a cure for Parkinson’s disease (PD). The Foundation applies extraordinary scientific, business and media assets to this singular focus—thus creating a unique and dynamic organization. Since inception, MJFF has quickly grown into the largest nonprofit funder of Parkinson’s disease research, having funded over $2 billion in research projects in both academic and industry labs worldwide.

Visit www.michaeljfox.org for more information.

Equal Employment Opportunity

As set forth in The Michael J. Fox Foundation for Parkinson's Research’s Equal Employment Opportunity policy,we do not discriminate on the basis of any protected group status under any applicable law.