Registered Nurse - Virtual - Evenings

CSL; Maine; Remote; USD 90,000 - 130,000; Full time

Job summary

CSL Behring is seeking a Nurse Resource Navigator to educate and support the Hemophilia B community on gene therapy across the patient journey. You will be a trusted resource for patients, HCPs, and advocacy groups, guiding steps before treatment and sharing CSL Behring patient support offerings.

The role requires regional coordination, education delivery, and strong collaboration with field teams to improve access and awareness of gene therapy options, while ensuring regulatory and policy

Qualifications

• Minimum 3–5 years in a hemophilia treatment center, patient-focused setting, or health care system.
• Experience educating patients, families, HCPs, and community groups about rare/genetic diseases.
• Ability to translate complex science into patient-friendly language.
• Willingness to travel ~50%, including evenings and weekends for advocacy events.
• Strong organization skills and ability to manage multiple priorities in field-based work.
• Bi-lingual a plus.
• Experience in bleeding disorders community preferred.
• Proficiency with Microsoft Office; SAP experience a plus.

Responsibilities

• Lead regional efforts to educate patients, families, and healthcare professionals about gene therapy and CSL Behring patient support offerings.
• Serve as a familiar point of contact for patients throughout the gene therapy journey.
• Respond to patient inquiries and provide compliant, accurate information about gene therapy.
• Educate patients and caregivers on CSL hemophilia products and services.
• Document interactions and track activity in CRM systems.
• Collaborate with field and internal colleagues to improve patient access and engagement.
• Advise on program development and improve patient support solutions.

Skills

Hemophilia experience

Patient education

Science to patient language

Travel readiness

Organizational skills

Bilingual (nice to have)

Bleeding disorders community knowledge

Microsoft Office

SAP experience

Education

BSN (Bachelor’s in Nursing)

Tools

Microsoft Office

SAP

Job description

The Nurse Resource Navigator will provide the Hemophilia B community with comprehensive, personalized support and education on gene therapy throughout the patient’s journey. This individual will serve as a high-value source of information about gene therapy and will offer support and guidance to potential candidates for gene-therapy. The Nurse Resource Navigator will educate patients, HCPs, and members of the bleeding disorders community regarding gene therapy as be part of a coordinated, field-based, regionally aligned team designed to represent CSL Behring to patients.

Lead regional efforts to support services education to patients, families/caregivers, healthcare professionals (nurses, medical assistants, office staff), nursing organizations, advocacy groups, educate patients on required steps that need to be taken prior to receiving treatment and provide information about CSL Behring patient support offerings

• Partnering with regional, field-based, and internal colleagues to identify barriers to patient access and help address them.
• Advisor who is a familiar point of contact for patients throughout their gene therapy journey
• Respond and anticipate patient inquiries to promote transparency and foster understanding of the science of gene therapy
• Provide in-depth education to patients who are interested in learning more about gene therapy
• Escalate clinical or medical inquiries to appropriate teams to ensure accurate and compliant responses
• Accurately document all interactions in compliance with company policies and industry regulations and complete required entries in CRM systems to track activity, outcomes, and metrics
• Educate patients/caregivers on CSL hemophilia products and services to promote a well-balanced understanding of treatment options and available support services through telephone communication, live/virtual patient and family meetings, and patient education programs
• Be a subject matter expert on all programs and services that CSL Behring provides to patients within the bleeding disorders community
• Actively collaborate with field and internal colleagues to increase disease-state awareness, promote early diagnosis, and support patient access.
• Provides coaching and timely guidance and work closely with field teams to ensure coordinated support and seamless patient experiences
• Offer feedback on existing workplans and propose innovative service offerings to improve patient and community engagement
• Influence across Sales, FRMs, Medical, Market Access
• Help to foster a positive relationship between CSL Behring and key stakeholders
• Report key insights and feedback from patient community
• Leads development of innovative patient support solutions for gene therapy adoption
• Owns key performance indicators that are critical to delivering on the role’s educational function
• Ensure full compliance with corporate policies, regulatory guidelines, and industry standards as defined by Commercial, Legal, Regulatory, and Compliance leadership
• Abide by all SOPs and guidance related to ethical interactions with consumers and healthcare providers
• Serves as a thought leader in patient engagement for rare disease/gene therapy

Remote role covering the East Coast Territory (NC, VA, DE, MD, NJ, CT, RI, MA, NY, PA, ME, DC, VT, WV)

Bachelor’s degree in Nursing (BSN)

• Minimum 3-5 years of experience of working in a hemophilia treatment center, patient-related organization or health care system
• Experience supporting and providing education to patients, family members, healthcare professionals, office staff, nursing organizations, and community groups affected by rare and ultra-rare genetic diseases (required)
• Ability to translate complex scientific and medical information into patient-friendly language
• Ability to travel-~50% including evenings and weekends for advocacy events
• Strong organizational skills with ability to manage multiple priorities in a field-based role
• Bi-lingual a plus
• Experience with the Bleeding Disorders Community strongly preferred
• Proficiency with Microsoft Office; SAP experience preferred

Focused on serving patients’ needs by using the latest technologies, we discover, develop and deliver innovative therapies for people living with conditions in the immunology, hematology, cardiovascular and metabolic, respiratory, and transplant therapeutic areas. We use three strategic scientific platforms of plasma fractionation, recombinant protein technology, and cell and gene therapy to support continued innovation and continually refine ways in which products can address unmet medical needs and help patients lead full lives.

CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. Our parent company, CSL, headquartered in Melbourne, Australia, employs 32,000 people, and delivers its lifesaving therapies to people in more than 100 countries.

For more information on CSL benefits visit How CSL Supports Your Well-being | CSL .

At CSL, Inclusion and Belonging is at the core of our mission and who we are. It fuels our innovation day in and day out. By celebrating our differences and creating a culture of curiosity and empathy, we are able to better understand and connect with our patients and donors, foster strong relationships with our stakeholders, and sustain a diverse workforce that will move our company and industry into the future.

To learn more about inclusion and belonging visit

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