Patient & Community Educator (PACE) - Central

Soleno Therapeutics, Inc.; United States; On-site; USD 180,000 - 205,000; Full time

Job summary

A mid-size biotech firm is seeking a Patient & Community Educator to provide education on Prader-Willi syndrome (PWS) and engage with patients and caregivers. The ideal candidate will have a relevant degree and extensive experience in the pharmaceutical industry, focusing on education in rare diseases. This role is pivotal for enhancing understanding and adherence to treatments within the PWS community.

Qualifications

• Minimum of 5 years’ experience in the pharmaceutical/biotech industry.
• At least 3 years’ experience designing or delivering patient education.
• Fluent in English; Spanish fluency is highly preferred.

Responsibilities

• Organize patient engagement activities in various settings.
• Conduct educational in-services for patients, caregivers, and healthcare providers.
• Collaborate cross-functionally to support education on VYKAT XR.

Skills

Communication of complex scientific information

Cultural competency

Proactive approach

Education

Bachelor’s degree in nursing, dietetics, or related field

Job description

Patient & Community Educator (PACE) - Central

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About Soleno Therapeutics Inc
Soleno is a biopharmaceutical company focused on the development and commercialization of novel therapeutics for the treatment of rare diseases based in Redwood City, CA.

At Soleno, we are driven by the unique and multi-faceted needs of the PWS community. Like these individuals, resilience is part of who we are – it is in our chromosomes – and our team is made up of exceptional colleagues whose collective efforts are woven together to deliver meaningful outcomes, both professionally and for those living with PWS.

We value collaboration, integrity, and respect. These characteristics have allowed us to forge strong, authentic bonds with the caregivers, patients, health care professionals (HCPs) and community members we serve. We are proud to work alongside them every step of the way.

Our employees are our greatest asset, and we're expanding across functions during this pivotal time. We invite you to join us in making an impact—and making history.

We all share the most important goal of bringing solutions to the PWS community.

Summary Of Job (brief Description)

The Patient & Community Educator (PACE) delivers compliant, non-promotional education to caregivers, patients, residential staff, and healthcare professionals on Prader-Willi syndrome (PWS) and Soleno’s approved therapy. PACEs are a field-based team authorized to provide direct education to patients and caregivers, ensuring accurate, consistent, and accessible information. Reporting to the Director PACE & DRS, and as part of the Commercial organization, PACEs support the commercial strategy by enhancing disease understanding, supporting treatment adherence, and fostering informed engagement across the PWS community.

This is an ideal role for an individual that is looking to join a growing organization that is devoted to the expansion and development of its team members and who wants to work for a mid-size biotech organization with a strong focus on patient centricity.

Responsibilities

• Organize and execute patient and caregiver engagement activities in various settings including one-on-one meetings, programs, conferences of all sizes, and using different communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
• Support national and regional advocacy events, conferences, and community programs, including evening and weekend activities as required.
• Share insights from field interactions with internal teams and the National Director PACE & DRS to inform educational strategies.
• Collaborate cross-functionally with Residential Stakeholder Directors (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing teams to support education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, providing educational support without directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identifying and coordinating appropriate advisors.
• Maintain timely documentation within the PRM system to record activities with patients, caregivers, and HCPs.
• Keep disease-state and product knowledge current through continuing education and attendance at relevant conferences and symposia.
• Use only approved resources and messages to perform responsibilities.
• Respect patient and caregiver privacy, managing all personal information in accordance with laws, regulations, and policies.
• Promptly notify clinical and regulatory personnel of any adverse events received.
• Establish and monitor metrics to evaluate the effectiveness of educational activities and adjust strategies as needed.
• Maintain documentation for clinical licenses and certifications.
• This role is not promotional and does not involve sales responsibilities.

Qualifications

• Bachelor’s degree in nursing, dietetics, social work, allied health, or a related clinical field; advanced degrees preferred. This role does not involve direct patient care.
• Minimum of 5 years’ experience in the pharmaceutical/biotech industry, with preferred experience in rare diseases, especially in Endocrinology, Rare Obesity/Hyperphagia, or Genetics.
• At least 3 years’ experience designing or delivering patient/caregiver education, preferably in rare diseases.
• Experience with product launches is advantageous.
• Strong understanding of industry legal, regulatory, and compliance standards.
• Excellent ability to communicate complex scientific/medical information in patient-friendly language.
• Fluent in English; Spanish fluency is highly preferred.
• Ability to work independently and as part of a diverse team.
• Excellent communication skills and cultural competency to engage diverse audiences.
• Highly passionate about rare diseases and proactive in approach.
• Availability for evening and weekend events, and willingness to travel domestically up to 50%+ with reliable transportation.

Salary Range: $180,000 - $205,000

(Actual salary may vary based on qualifications, skills, experience, and location.)

Additional Details

• Seniority level: Mid-Senior level
• Employment type: Full-time
• Job function: Other
• Industry: Pharmaceutical Manufacturing