Associate Director, US Patient Advocacy

argenx SE; United States; Remote; USD 164,000 - 226,000; Full time

Job summary

argenx SE is seeking a senior Patient Advocacy professional to lead the development and implementation of patient advocacy strategies across disease areas in a remote role. The role focuses on engaging with PAOs, translating strategy into actionable tactics, and partnering with cross-functional teams to support patients and caregivers in the US.

Ideal candidates will have a strong background in rare diseases, experience with Veeva, and a proven ability to drive advocacy programs while traveling

Qualifications

• Passion for understanding and championing the needs of people living with rare diseases and their communities.
• Strong communication skills with the ability to listen, write, and present effectively across stakeholders.
• Desire to integrate patient voice into the end-to-end product lifecycle at argenx.

Responsibilities

• Develop and implement patient advocacy strategies and engagement plans for disease areas.
• Balance and prioritize pipeline indications and in-market indications (e.g., gMG, CIDP).
• Execute advocacy engagement nationally and in local geographies with cross-functional teams.
• Build and manage relationships with US PAOs and represent argenx at events.
• Provide local support to patient services during onboarding and education efforts.
• Inform local market engagement by generating and synthesizing insights for teams.
• Drive cross-functional collaboration to align activities with the Advocacy strategy.

Skills

Patient advocacy

Communication skills

Patient voice integration

Education

Bachelor's degree

Tools

Veeva

Job description

Join us as we transform immunology and deliver medicines that help autoimmune patients get their lives back. argenx is preparing for multi-dimensional expansion to reach more patients through a rich pipeline of differentiated assets, led by VYVGART, our first-in-class neonatal Fc receptor blocker approved for the treatment of gMG, and with the potential to treat patients across dozens of severe autoimmune diseases. We are building a new kind of biotech company, one that maintains its roots as a science-based start-up and pushes our commitment to innovate across all corners of our business. We strive to inspire and grow our company, our partnerships, our science, and our people, because when we do, we deliver more for patients. At argenx, we are committed to putting the patient first. As a member of the US Patient Advocacy Team, you will play a key role within the broader argenx ecosystem in integrating the patient voice early and often into everything we do to better serve patients and their communities. This person will be responsible for acting as the primary point of contact for our external Patient Advocacy Organization (PAO) partners as well as our internal argenx teams to ensure we show up consistently as their partner of choice. To be successful, this person will need to set and maintain an indication-level Advocacy strategy, communicate the strategy to internal/external partners, bring the patient voice into development milestones (e.g., end point selection, etc.), and partner with our cross-functional teams to show up for our patient communities for in-market indications during the moments that matter. This is a remote-based position. To help meet the needs of the patient communities we serve, you will spend meaningful time in the geographies you cover, building relationships with PAOs and attending prioritized patient events either live or virtually as appropriate. At times, these events may take place outside of standard business hours, a flexible schedule will be developed to accommodate evening and weekend work.

Key Responsibilities

• Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate objectives and strategies.
• Effectively balance and prioritize both pipeline indications and in market indications (i.e. gMG and CIDP).
• Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events.
• Build and manage relationships with US PAOs.
• Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally identified opportunities, etc.
• Provide local support to patient services team during the patient onboarding process.
• Represent argenx externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary.
• Define and measure business impact at local, regional, and national events.
• Build and maintain proficiency in the disease state, Patient Experience, and product knowledge to support the needs of the community.
• Inform local market engagement by generating and synthesizing insights for teams.
• Work cross-functionally within the ecosystem of support at argenx to identify the needs and opportunities relevant to patient advocacy.
• Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications.
• Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process.
• Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues.
• Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working.

Requirements

• Bachelor’s Degree required
• 10 years industry or related experience
• Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities
• Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area
• Veeva experience and proficiency required
• Experience with rare disease patient interactions and compliance required
• Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings).
• Flexible schedule will be developed to accommodate evening and weekend work.

Skills, Knowledge & Abilities

• Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their community, resulting in elevated Patient Experience
• Strong communication skills with the ability to listen actively, express ideas fluently and succinctly both in person and in writing, and present effectively; especially important to understand the perspectives of and work collaboratively with other argenx internal stakeholders
• Desire to integrate the patient voice into the end-to-end product lifecycle at argenx and the knowledge to know when, where, and how to do so

Preferences

• Advanced Degree #LI-Remote

Salary

For applicants in the United States: The annual base salary hiring range for this position is $164,000.00 - $225,500.00 USD. This range reflects our good faith estimate at the time of posting. Individual compensation is determined using objective, inclusive, and job-related criteria such as relevant experience, skills, demonstrated competencies and internal equity. This means actual pay may differ from the posted range when justified by these factors. Because market conditions evolve, pay ranges are reviewed regularly and may be adjusted to remain aligned with external benchmarks.

Benefits

• This job is eligible to participate in our short-term and long-term incentive programs, subject to the terms and conditions of those plans and applicable policies.
• It also includes a comprehensive benefits package, including but not limited to retirement savings plans, health benefits and other benefits subject to the terms of the applicable plans and program guidelines.

Equal Opportunity

At argenx, all applicants are welcomed in an inclusive environment. They will receive equal consideration for employment without discrimination on the basis of race, color, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, disability, or any other applicable legally protected characteristics. argenx is proud to be an equal opportunity employer.

Privacy Notice

Before you submit your application, CV or any other personal details to us, please review our argenx Privacy Notice for Job Applicants to learn more about how argenx B.V. and its affiliates (“argenx”) will handle and protect your personal data. If you have any questions or you wish to exercise your privacy rights, please contact our Global Privacy Office by email at [e-mail]. If you require reasonable accommodation in completing your application, interviewing, or otherwise participating in the candidate selection process please contact us at [e-mail]. Only inquiries related to an accommodation request will receive a response.

Recruitment & Staffing Agency Information

argenx honors the terms of our written agreements with the recruiting and staffing agencies that we retain and contract with to assist us with talent searches and other recruiting needs. Accordingly, all resumes and referrals that recruiting and staffing agencies proactively share with argenx that (i) were not solicited or requested by argenx’s internal Talent Acquisition team and (ii) were sent in the absence of a valid, written agreement between argenx and the firm, recruiter, or agency, may be pursued by argenx and are ineligible for payment of referral or other fees.

Company Information

argenx is a global immunology company dedicated to improving the lives of people suffering from severe autoimmune diseases. Through our rich pipeline of first-in-class therapies, led by VYVGART®, we are accelerating progress toward our bold 2030 vision: to reach 50,000 patients and transform the landscape of autoimmune treatment. Our innovation mission combines with meaningful work and endless opportunities for growth to create once-in-a-career experiences. argonauts work in locations around the globe including Belgium, Boston, Japan and Amsterdam. There's more to discover at argenx, where our passion inspires bold possibility.