Neuromuscular Care Advisor and MND Care Coordinator

St George's University Hospitals; City of Westminster; On-site; GBP 30,000 - 40,000; Full time

Job summary

A leading health provider in the United Kingdom is seeking a Neuromuscular Care Advisor responsible for coordinating clinical care for individuals with neuromuscular conditions and enhancing their quality of life. You will collaborate with healthcare professionals and support patients and their families. This position offers a chance to make a significant impact by reducing unplanned hospital admissions through proactive care management.

Qualifications

• Experience working with individuals living with neuromuscular conditions.
• Ability to coordinate clinical care and improve quality of life.

Responsibilities

• Provide a single point of access for individuals living with neuromuscular conditions.
• Reduce unplanned admissions through proactive community care.
• Support the management of the MND Care Network.

Job description

Job Overview

This is a joint post, working mainly as a Neuromuscular Care Advisor, but also as a MND Care Coordinator for 1 day a week. This role will work collaboratively with the established Neuromuscular Care Advisor and MND Care Coordinator posts to support and enhance current practice. The post holder will work closely with individuals living with a neuromuscular condition, including Motor Neuron Disease, and their families to co‑ordinate clinical care, improve overall quality of life and reduce unplanned hospital admissions.

Responsibilities

• In collaboration with the established Neuromuscular Care Advisor (0.6 WTE), providing a single point of access for individuals living with a neuromuscular condition and their families to improve patient experience.
• Reducing unplanned admissions through providing coordinated proactive community care, supporting people to stay safe at home and out of hospital.
• Acting as a catalyst for change by working across professional and organisational boundaries to identify gaps in care and working collaboratively with colleagues to generate alternative solutions to best meet service users' needs.
• Enhancing the quality of life of people living with neuromuscular conditions and their families through advocacy, self‑management and empowerment. In collaboration with the established 0.8 WTE MND Care Coordinator, help support the management of the day‑to‑day running of the MND Care and Research Network by providing a single point of contact for people with MND in the region, their carers and their health‑care professionals, including signposting to appropriate local services in the region with onward referral as appropriate, support with expert advice or recommended referral into the Care Centre.

About the Hospital Group

St George's, Epsom and St Helier University Hospitals and Health Group cares for a population of four million people in South West London and North East Surrey. Our sites include St George's Hospital, one of 11 major trauma centres in the UK and the largest healthcare provider and major teaching hospital in the area; St Helier Hospital, home to the South West Thames Renal and Transplantation Unit and Queen Mary's Hospital for Children; and Epsom Hospital, home to the South West London Elective Orthopaedic Centre (SWLEOC).

About the Neuroscience Centre

The Atkinson Morley Regional Neurosciences Centre at St George's Hospital is the regional neurosciences specialist unit for south‑west London and Surrey. The Neuromuscular Unit consists of 5 consultant neurologists, together with a fellow Care Advisor, Clinical Specialist Neuromuscular Physiotherapist, MND Care Coordinator, Clinical Genetics CNS, band 4 neuromuscular coordinator and a team of 5 consultant neurophysiologists, 3 consultant neuropathologists and a neuroradiologist. The service works very closely in supporting patients' care with neurorehabilitation services, chronic pain services, paediatric neurology, cardiology, respiratory medicine and the nutrition team at St George's Hospital. The team also works very closely with the neurology departments in District General Hospitals throughout South West London and Surrey. Close links and joint working with local community neuro rehabilitation teams is essential.