Motor Neurone Disease Specialist Nurse

Hull University Teaching Hospitals NHS Trust; Hull and East Yorkshire; On-site; GBP 40,000 - 57,000; Full time

Job summary

Hull University Teaching Hospitals NHS Trust in Hull is advertising a Motor Neurone Disease Specialist Nurse. The post holder will work autonomously within the Neurology Department at Hull Royal Infirmary and join a multidisciplinary team to deliver specialist MND care from diagnosis through end of life.

You will develop education programmes, support patients and families, and liaise across acute and primary care.

Qualifications

• Experience in busy healthcare environments.
• Minimum of 3 years post graduate experience.
• Experience with palliative/end of life care.
• Non-Medical Prescribing qualification or willingness to work towards.
• Level 7 assessment/examination qualification or willingness to work towards.
• Experience with Neurology patients.
• Evidence of continuing professional development.
• Evidence of leadership skills development.

Responsibilities

• Undertake detailed responsibilities under communication, human resource management, performance and resource management, decision making and advice, initiating and implementing change, quality and governance, and health and safety.
• Collaborate with multidisciplinary teams to deliver holistic patient care for people with MND and their families.
• Contribute to education programmes for patients, families, carers and healthcare professionals.
• Provide specialist clinic advice and act as a resource within both Acute Trust and Primary Care settings.
• Promote and participate in clinical and nursing research as part of the role.
• Assist in developing and implementing care plans across acute and primary care services.

Skills

MND care

Autonomy at work

Teamwork

Leadership development

Confidentiality

Education delivery

Research awareness

Education

BSc Adult Nursing

Job description

Hull University Teaching Hospitals NHS Trust

Motor Neurone Disease Specialist Nurse

The closing date is 05 November 2026

The post holder will provide a specialist nursing service to people with Motor Neurone Disease (MND) and their families. The postholder will work autonomously and will be an integral part of the Multidisciplinary Team within the Neurology Department at Hull Royal Infirmary.

The role of the MND Specialist Nurse will encompass the delivery of holistic patient focused care, based upon nursing assessment to people with MND who live in Hull and the East Riding of Yorkshire and who are under the care of a Neurologist in the Neurology Department at Hull Royal Infirmary. The post holder will provide specialist support to people with MND and their family, from their diagnosis, through to end of life care, including referral for bereavement and support where appropriate. They will be required to work across both acute and primary care sectors in liaison with a broad Multidisciplinary Team.

The post holder will participate in the development of formal and informal education programmes for patients, families, carers and healthcare professionals, to promote a better understanding of MND. They will also act as a resource to patients, families, carers and healthcare professionals for specialist clinic advice within both the Acute Trust and the Primary Care Trusts it serves. The promotion and participation in clinical and nursing research will be an integral part of the post.

Main duties of the job

To be undertake detailed responsibilities under the following sections:

• communication
• human resource management
• performance and resource management
• decision making and advice
• initiating and implementing change
• Quality and clinical governance
• health and safety

Please see attached job description for full details of duties.

About us

The Humber Health Partnership is one of the largest acute and community Partnership arrangements in the NHS, seeing well over one million patients every year and managing a budget of over £1.3 billion.

Made up of two Trusts - Northern Lincolnshire and Goole NHS Foundation Trust (NLAG) and Hull University Teaching Hospitals NHS Trust (HUTH) - our Partnership has significant ambitions and is committed to delivering world-class hospital and community services for the 1.65 million people we serve.

Together we employ nearly 20,000 staff. Our five main hospital sites are Diana, Princess of Wales Hospital, Scunthorpe General Hospital and Goole and District Hospital, for NLAG and Hull Royal Infirmary and Castle Hill Hospital for HUTH.

As Teaching Hospitals working with the Hull York Medical School, we both lead and contribute to research in many areas - biomedical research, primary care, palliative medicine, cardiovascular and respiratory medicine, vascular surgery, cancer surgery and oncology.

We believe that by developing a diverse, inclusive, innovative, skilled and caring workforce, we can deliver excellent care to our patients and a great future for our employees, our Partnership and our community.

Job responsibilities

For further details with regard to this vacancy opportunity, please see the attached Job Description and Person Specification.

We welcome applications from candidates who require Skilled Worker Visa sponsorship to work in the UK, and these will be considered alongside all other applications in line with our commitment to equality and inclusion.

Applicants can determine their potential eligibility for a Certificate of Sponsorship by reviewing the Skilled Worker Visa criteria set out by UKVI on the gov.uk website.

We remain committed to fair and equal recruitment practices and encourage applications from all suitably qualified candidates who have the right to work in the UK.

Person Specification

Knowledge, Training & Experience

• Experience (through placements or employment) of working in a busy environment.
• Minimum of 3 years post grad experience
• Experience of working with palliative care/end of life patients
• Non-Medical Prescribing qualification OR willingness to work towards if not already achieved.
• Level 7 assessment and examination qualification or willingness to work towards
• Experience of working with Neurology patients
• Evidence of continuing professional development
• Evidence of leadership skills development

Communication and Interpersonal Skills

• Possess excellent organisational skills
• Be able to work on own initiative
• Works well within a team
• Demonstrates understanding of confidentiality
• Participates in standard setting and research projects
• Evidence showing clinical and professional development
• To be able to plan, assess, implement and evaluate patient care
• Ability to prioritise care associated with changing environment/ patient demands
• Facilitate learning of others

Education/ Qualifications

• BsC Adult nursing or equivalent qualification

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Hull University Teaching Hospitals NHS Trust

£39,959 to £56,515 a year(band 6 until competencies completed approx. 12-18 months)