Motor Neurone Disease Research Nurse

St George's University Hospitals; City of Westminster; On-site; GBP 60,000 - 80,000; Full time

Job summary

A leading healthcare institution in the United Kingdom is seeking a professional dedicated to advancing MND research. The role involves overseeing clinical trials, conducting assessments, and supporting a network of healthcare professionals focused on improving outcomes for people living with MND. With a commitment to compassionate care and rigorous data management, this position offers an opportunity to impact neurological care significantly.

Responsibilities

• Contribute to MND research and clinical trials.
• Oversee and support clinical trials aimed at MND improvement.
• Conduct assessments and ongoing monitoring for plwMND.

Job description

Responsibilities

• Contribute to the progress of MND research and clinical trials, dedicating 100% of efforts to supporting, delivering, and leading initiatives that contribute to breakthroughs in MND care and understanding.
• Collaborate effectively with the MND Association to support the strategic development and growth of the Research Nurse Network.
• Oversee and support clinical trials and research efforts aimed at improving outcomes for people living with MND, playing a pivotal role in facilitating high-quality research and trial execution.
• Conduct assessments and ongoing monitoring for people living with MND (plwMND) as they enter and participate in research, ensuring thorough, compassionate care and rigorous data collection.
• Collaborate with multidisciplinary teams to ensure studies are conducted smoothly and in full compliance with protocols, legislation, and relevant guidelines.
• Maintain and manage clinical study databases for plwMND, ensuring accuracy and currency of all research data to support impactful findings.
• Serve as an expert resource for patients, caregivers, and healthcare professionals, offering information and support on MND research and clinical trials.
• Handle additional responsibilities essential to the efficient operation of MND research and trial initiatives, contributing to the effective management and execution of all related tasks.

About MND

Motor neurone disease (MND) is a rare neurological condition that causes the degeneration (deterioration and loss of function) of the motor system (the cells and nerves in the brain and spinal cord which control the muscles in our bodies). This results in weakness and wasting of the muscles which can result in progressive weakness in the arms, legs, speech and swallowing and sometimes breathing. MND is progressive and symptoms worsen over time. Sadly, MND severely reduces life expectancy and most people with MND die within five years of the onset of symptoms.

The South West London and Surrey MND Care and Research Network

The South West London and Surrey MND Care and Research Network was launched in September 2024 and aims to provide excellent and equitable access to clinical care and research across the regions. The network is led by two consultant neurologists with an interest in MND.

Clinical research and clinical trials are vital to improve the treatment options for people living with MND. At St Georges we are supported by a band 7 lead neurology nurse and two band 6 MND research practitioners and are currently actively recruiting to a number of clinical trials.

The focus of this role is to ensure all people living with MND in South West London and Surrey have the opportunity to discuss clinical research with a knowledgeable practitioner who can also support our regional network of health care professionals providing clinical care to people living with MND in the region, St. George's University Hospitals NHS Foundation Trust is one of the UK's largest healthcare organisations and has recently integrated with Community Services Wandsworth. The Trust shares its main hospital site in south west London with St. George's University of London and is linked to Kingston Faculty of Health and Social Care Sciences. St. George's has an established national and international reputation as a leading hospital for specialist care including neuroscience, cardiac care, stroke and cancer. We provide excellent local care to the residents of Wandsworth and regional care as both, a hyper-acute stroke unit and trauma centre.

As well as acute hospital services, St. George's provides a wide variety of specialist and community hospital-based care and a full range of community services to children, adults, older people and people with learning disabilities. These services are provided from St George's Hospital, Tooting, Queen Mary's Hospital, Roehampton, 11 health centres and clinics, schools and nurseries, patients' homes and Wandsworth Prison.

We employ over 8,000 staff have an annual income of £560m, around 1,100 beds and we serve a population of 1.3 million across south west London. We expect all our staff to share the values that are important to the Trust - being excellent, kind, responsible and respectful - and behave in a way that reflects these.