Clinical Nurse Specialist Neurofibromatosis | Guy's and St Thomas' NHS Foundation Trust

Guys and St Thomas NHS Foundation Trust; Greater London; On-site; GBP 35,000 - 45,000; Full time

Job summary

A leading healthcare provider in Greater London is seeking an experienced Clinical Nurse Specialist to deliver specialized care for patients with complex health needs. This role emphasizes collaboration within a multidisciplinary team to provide high-quality, evidence-based care in neurology, oncology, and long-term condition management. Candidates should have strong clinical skills, a nursing qualification, and a commitment to patient advocacy. Full training will be provided, and a supportive work environment is offered.

Qualifications

• Experience in managing complex patient cases.
• Ability to work autonomously within scope of practice.
• Strong communication skills for patient and family education.

Responsibilities

• Provide specialist support and education to patients affected by NF.
• Manage individual patient care paths and advocate for patients.
• Ensure adherence to clinical guidelines and protocols.

Skills

Neurology experience

Oncology experience

Long-term condition management

Leadership

Education

Registered Nurse qualification

Job description

Are you an experienced nurse looking to develop your career in neurology, oncology, or long‑term condition management? Do you find fulfillment in supporting patients with complex, lifelong health needs?

We are one of only four National Centres for Neurofibromatosis (NF) in the UK, and an exciting year‑long secondment has arisen to, friendly, multidisciplinary team as the NF Clinical Nurse Specialist.

This developing role offers excellent potential for career progression. Our service provides expert, lifelong care to patients and families living with NF1, NF2, and Schwannomatosis. Please note that previous experience in NF is not required.

In this role, you will be a confident and autonomous nurse, working within your scope of practice to meet the unique needs of patients. You will deliver specialist support, education, and healthcare liaison for adults affected by NF, alongside a dedicated CNS team and wider multidisciplinary colleagues at Guy’s Hospital.

Our team cares for patients across the lifespan, with a strong emphasis on transition, and we collaborate closely with paediatric colleagues both within and beyond our Trust.

If you have experience in neurology, oncology, or long‑term conditions and are eager to apply your skills in a specialist service, we would love to hear from you. Full training and development will be provided.

To discuss the role and your suitability, please get in touch. Informal visits are strongly encouraged.

As a clinical nurse specialist you will be an integral part of the multi‑disciplinary team working together to deliver this specialist service.

You will be responsible for developing and working within evidence‑based specialist pathways of care, guidelines, protocols and patient group directives to support patients and their families to improve care delivery.

You will receive support to develop the specialist knowledge required for this role from the multidisciplinary team.

Clinical and Patient Care

• Independently manage a group of patients within the specialty whilst working as part of the multidisciplinary team, delivering specialised individualised and personalised direct patient care
• Demonstrate appropriate practice and specialist advice in the assessment, planning, implementation and evaluation of patient care. This includes history taking, physical examination and the requesting of agreed diagnostic procedures/clinical investigations.
• Responsible for the correct administration of prescribed medication including transfusion of blood and blood products
• Be responsible for assessing and recognising emergencies in the speciality. To interpret information and take appropriate action and to lead others to do the same.
• Act as an advocate for patients within the department, to ensure a patient orientated approach to the delivery of care and to meet standards within the NHS Plan and other relevant guidelines.
• Ensure that patients’ receive high quality clinical care and a good patient experience, having regard for their customs, religious beliefs and doctrines.
• Recognise and avoid situations that may be detrimental to the health and wellbeing of the individuals.
• To provide leadership, support and guidance to staff in monitoring the planning delivery and evaluation of individualised specialist care.
• Is wholly accountable for his / her practice in line with the NMC code of professional conduct and takes every reasonable opportunity to sustain and improve his / her knowledge and professional competence.
• Ensure safe and effective care for complex patients requiring advanced specialist clinical skills and responsible for carrying out specialist nursing procedures to area.
• To be responsible, for maintaining a safe environment for patients, visitors and other staff within the clinical environment.
• Ensure that sensitive patient records are stored appropriately.
• Ensures the cultural and spiritual needs of patients are recognised and accommodated within resources available.
• Support and enable patients and carers to make informed decisions relating to their treatment and management.
• Participate in case conferences in relation to the management of patients, ensuring the coordination of ongoing care.
• Ensure staff take precautions to minimise the risk of cross infection in relation to the safe disposal of body fluids (including blood).
• A key member of the multidisciplinary team in supporting patients and their carers during the delivery of bad news such as caring for the terminally ill patients and the event of death.
• Assess educational and information needs for patients and families, and devise plans to ensure need are met.
• To be an effective communicator with patients/carers/families regarding disease treatment and management.
• Promote high quality clinical care, and assist in the development of the specialist service, through the use of evidence based practice and clinical standards.
• Provide a seamless, high quality service from referral through to assessment, diagnosis, treatment and review.

For more detailed responsibilities please refer to the Job description and Person specification attached

This advert closes on Monday 8 Dec 2025